About us
Our organization
Yodalix is a charity dedicated to supporting children living with congenital dyserythropoietic anemia (CDA). We firmly believe that every child deserves an equal chance to grow up and thrive, whatever challenges they face.
Our team is made up of dedicated volunteers who give their time to improve these children's everyday lives. We are here to tell their stories, and we hope to inspire others to join our mission.
The team
Meet the Yodalix volunteer team
President
Wanda BEGUELIN CHARTRON
Mother of a little girl with CDA, Wanda discovered the disease when her daughter was two months old. That experience inspired her to create Yodalix, to advance research and improve children's everyday lives.
Treasurer
Alice SIMON
A management controller and mother of two, Alice grew up in a family of doctors. As a blood donor and registered bone marrow donor, joining Yodalix was an obvious choice for her.
Secretary
Flore CHAMBON
Mother of two little girls, Flore has always worked in the fashion industry. With Yodalix, she has found meaning in giving her time and energy to help children and their families.
​
Medical lead
Elise SANCELME
An anesthesiologist in Lyon, Dr Sancelme brings her medical expertise to Yodalix. As the association's medical lead, she supports its scientific and medical projects — this time alongside patients and their families.
Social lead
Margaux RAMET
An operating-room nurse and mother of two, Margaux cares deeply about social causes. At Yodalix, she makes sure donations make a real difference to the everyday lives of children in hospital.
Volunteer
Johanne DUMONT
Godmother of a little girl with CDA, Johanne is personally touched by the cause. She naturally joined Yodalix to give her time and help children and their families in her own way.