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Congenital dyserythropoietic anemia (CDA) is a rare disease that affects the production of red blood cells in the body. Although little known, it has a significant impact on the lives of the people who live with it. Research into this condition is essential to improve treatments and patients' quality of life. In this article, we look at how everyone can contribute to this research, whether through donations, raising awareness or taking part in clinical studies. Close-up view

Why did I create Yodalix? A few weeks ago, our daughter was diagnosed with a rare disease: congenital dyserythropoietic anemia, or CDA. We never saw it coming. I'd had a normal pregnancy and a normal delivery. We already had a healthy 3-year-old daughter. Nothing suggested that we were about to welcome a child with a rare disease. And yet, from the moment she was born, everything was complicated. The first weeks: from jaundice to the first transfusions In her very first days

🧬 Why can two healthy parents have a child with a genetic disease? Some genetic diseases are called recessive. This means that both parents can be perfectly healthy while carrying a faulty copy of the gene. Each parent has two copies of every gene and passes only one of them on to their child. If both parents are carriers, there are several possibilities with each pregnancy: a 25% chance that the child receives both faulty copies and has the disease; a 50% chance that the ch

🦴 What is bone marrow for? Bone marrow is found inside our bones. You can think of it as a real factory that makes our blood cells. It mainly produces three big families of cells: 🔴 Red blood cells, which carry oxygen throughout the body and keep our organs supplied with oxygen. ⚪ White blood cells, which are part of our immune defenses and help us fight off viruses and germs. 🩸 Platelets, which play an essential role in blood clotting and help limit bleeding. Once made in

A first fundraiser full of good cheer, a marathon, bets on a finishing time and, above all, a wonderful show of solidarity: a look back at Yodalix's very first fundraising event. An idea from Alexis It all started with Alexis, who suggested running a bingo game around his marathon time. The idea was simple: everyone could bet on the time he would finish in on race day. An original and friendly way to combine a sporting challenge with a great cause, while giving everyone a cha

Aged 18 to 35, sign up online, a simple saliva sample: becoming a bone marrow donor is easy. We explain everything in a video.

What if saving a life were simpler than you think? 🩸 In around 80% of cases, stem cells are collected directly from the blood, over a few hours. 🦴 In around 20% of cases, the cells are taken from the pelvic bone, under general anesthesia. Either way, the donation is medically supervised and you usually go home quickly. ❤️ Are you between 18 and 35 and in good health? You could be a match for someone waiting for a donor. Join the bone marrow donor registry. 🩷 👉 Find all th