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How to help research into congenital dyserythropoietic anemia
Congenital dyserythropoietic anemia (CDA) is a rare disease that affects the production of red blood cells in the body. Although little known, it has a significant impact on the lives of the people who live with it. Research into this condition is essential to improve treatments and patients' quality of life. In this article, we look at how everyone can contribute to this research, whether through donations, raising awareness or taking part in clinical studies. Close-up view
yodalix
19 hours ago3 min read


What is a genetic disease?
🧬 Why can two healthy parents have a child with a genetic disease? Some genetic diseases are called recessive. This means that both parents can be perfectly healthy while carrying a faulty copy of the gene. Each parent has two copies of every gene and passes only one of them on to their child. If both parents are carriers, there are several possibilities with each pregnancy: a 25% chance that the child receives both faulty copies and has the disease; a 50% chance that the ch
yodalix
19 hours ago1 min read


What does bone marrow actually do?
🦴 What is bone marrow for? Bone marrow is found inside our bones. You can think of it as a real factory that makes our blood cells. It mainly produces three big families of cells: 🔴 Red blood cells, which carry oxygen throughout the body and keep our organs supplied with oxygen. ⚪ White blood cells, which are part of our immune defenses and help us fight off viruses and germs. 🩸 Platelets, which play an essential role in blood clotting and help limit bleeding. Once made in
yodalix
19 hours ago1 min read


🎬 Becoming a bone marrow donor in 3 steps
Aged 18 to 35, sign up online, a simple saliva sample: becoming a bone marrow donor is easy. We explain everything in a video.
yodalix
20 hours ago1 min read


🧬 Scared of donating bone marrow? Let us explain!
What if saving a life were simpler than you think? 🩸 In around 80% of cases, stem cells are collected directly from the blood, over a few hours. 🦴 In around 20% of cases, the cells are taken from the pelvic bone, under general anesthesia. Either way, the donation is medically supervised and you usually go home quickly. ❤️ Are you between 18 and 35 and in good health? You could be a match for someone waiting for a donor. Join the bone marrow donor registry. 🩷 👉 Find all th
yodalix
20 hours ago1 min read
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